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ILHIE Connect Patient Participation 

The Illinois Health Information Exchange (ILHIE) Connect is a statewide, secure electronic network for sharing your health information among authorized users. By connecting to ILHIE Connect, your doctors, hospitals, and others involved in your care can share important patient health information in a secure environment.
  • If you do not want your health information available using ILHIE Connect, read the instructions at the bottom of this page to opt-out.
  • If you change your mind and want to opt-in, read the instructions at the bottom of this page to opt-in.

ILHIE Connect FAQs: Learn more about the health information exchange and your options for participating in ILHIE Connect 

What is the ILHIE?

Your health care providers share your health information with each other to assist in your care. The Illinois Health Information Exchange (ILHIE) is a statewide, secure computer network for electronically sharing information about your health care to improve your care.

What are Electronic Medical Records (EMRs)?

An Electronic Medical Record (EMR) is an electronic version of your medical history that includes much of the same information also kept in your health care provider’s paper files. This information includes your name, medications, diagnoses, allergies, lab test results and contact information.

What is ILHIE Connect?

ILHIE Connect is a service of the ILHIE that allows your doctor, specialists, hospitals, clinics, health insurance provider, and labs to share a summary of your health information over a secure computer network.

What are the Benefits of ILHIE Connect?

Allowing a health care provider to access your health information through ILHIE Connect can improve the quality of your care and perhaps save your life.
  • Your doctors have quick access to a more complete picture of your medical history to make better informed and safer decisions about your care
  • You won’t need to complete as many forms every time you visit another doctor
  • Your medical information is stored in your health care provider’s EMR system
  • Having access to your health information might result in not having to take the same medical tests over again ILHIE Connect can lower the cost of health care

Where Does the Information in ILHIE Connect Come From?

Your health information comes from health care providers with information about your health care, like your doctors, pharmacies, clinics, laboratories, hospitals therapists, or other health care providers.

Why Should my Health Information be Shared?

Currently, your health information may exist in many different locations. For instance if you visit a specialist, your primary care doctor may not have access to that information. Health care providers can make better decisions about your care when they have access to up-to-date health information such as medications, allergies, lab tests etc.

What Health Information Will be Shared through ILHIE Connect?

Health information shared through ILHIE Connect may include your diagnoses, test results, medications, allergies, and other treatment information.

Who Can Access My Health Information Using ILHIE Connect?

Only your doctor or authorized health care professionals involved in your health care, with correct information and passwords, can create, view, update or share your records. ILHIE Connect keeps track of who views your health information and when.

How Can Sharing My EHR Help in an Emergency?

When you need care, you might be far from home or unable to speak or remember important information such as the names of your medications or allergies. Participating in ILHIE Connect allows a health care provider to access your health information in an emergency that may save your life.

Can I Access my Electronic Medical Records?

By law you have the right to get a copy of your medical records from your health care provider. Contact your provider about how to request a copy of your record.

Can I Hold Back Some Parts of my Medical Records I Do Not Want to be Shared?

No, at this time ILHIE Connect cannot exclude specific information from your record from being shared. If you do not want some or all of the health information that a particular health care provider has about you to be shared, you should opt out with that provider to prevent that provider from sharing any of the health information that is held by that provider.

Is My Shared Health Information Kept Confidential and Secure?

Yes. Federal and Illinois law protects your health information on paper and in electronic files. Your information is encrypted and sent over secure computer connections.

What About Patients Who are Under 12 Years Old?

Parents and legal guardians of patients ages 11 and under can make the decision about whether the minor’s health information can be shared through ILHIE Connect. Patients aged 12 and older must make their own decision about ILHIE Connect participation.

Will Mental Health Treatment Records be Shared through ILHIE Connect?

Yes. Recent important changes were made in Illinois law to facilitate electronic sharing of your health information through ILHIE Connect, including mental health information. Previously, you had to give consent to share your mental health information. While a therapist’s personal notes will never be disclosed via ILHIE Connect, if you do not want your other mental health information to be shared through ILHIE Connect, you should complete an ILHIE Connect Opt-Out Form.

Will Health Records That Include HIV/AIDS Information, Genetic Testing Information, and/or Sexual Assault Information be Shared through ILHIE Connect?

No, not unless you consent. This information is considered specially protected health information and it cannot be shared through ILHIE Connect without your consent unless required by law.

Will Alcohol or Drug Treatment Health Records be Handled Differently?

It depends. Certain alcohol and drug abuse health care providers cannot share your drug and alcohol abuse treatment health records under federal and Illinois law. The drug and alcohol abuse treatment health records these providers have will not be shared through ILHIE Connect. Check with your provider or visit hie.illinois.gov for more information. With your permission, your health care providers can share some of this information through fax, U.S. mail or other specific HIPAA compliant options.

How Can I Be Included in ILHIE Connect?

If you want your health records to be shared by ILHIE Connect Users, you do not need to do anything, unless your provider has removed you from participation. For additional information ask your provider and see the instructions to opt-in.

What if I Have More Questions?

If you have more questions, please talk with your health care provider. They want you to have the information you need to make an educated choice about the way your health information is shared with other health care providers. You can also contact ILHIE at ILHIE.Privacy@Illinois.gov for more information.

Download the Complete ILHIE Notice (as required for Meaningful Disclosure)

Download the ILHIE Connect Signage

  • If your doctor is an ILHIE Connect User, this notice must be displayed

 


Health IT For You Video

Health Information Technology, or Health IT for short, is upgrading our healthcare system for the 21st Century. Today's technology is converting the information in our paper records into an electronic format which allows you and your doctors to have access to your health information when and where it's needed. View this video and learn more about the benefits of health IT and how online, secure access to your health records can help ensure that you and your families get the best possible care.

Knowledge is Power! The ILHIE Health IT Consumer Education Toolkit

The ILHIE Health IT Consumer Education Toolkit was developed to provide you with simple, informative materials to better understand health IT and to be more proactive in your health and the health of your family.

Click below to access the Toolkit, and please feel free to share it with family and friends:


Instructions to Opt-Out or Opt-In

I Do Not Want to Participate in ILHIE Connect

Participation is voluntary. If you do not want your personal health information to be shared through ILHIE Connect, you have the right to restrict the sharing of your health information. However, placing this restriction on your health information means that your health records will not be available even in the case of a life threatening medical emergency.
    1. Give the completed form to your health care provider; OR
    2. Have the completed form signed by a notary public. Notarization protects you and assists the ILHIE Authority to verify your identity. Submit the notarized form by fax to 312-814-5073, scan and email the form to ILHIE.Privacy@Illinois.gov, or mail it to: ILHIE Authority 100 West Randolph Street, Suite 4-750 Chicago, IL 60601.
  • It may take up to 3 business days from the ILHIE Authority’s receipt of your form for election to take effect.

I Changed My Mind: I Previously Opted-Out of ILHIE Connect and Would Like to Opt-In

Even if you previously submitted an ILHIE Connect Opt-Out Form, you can change your mind and decide to opt in to ILHIE Connect at any time. Ask your health care provider for an ILHIE Connect Opt-In Form or print the ILHIE Connect Opt-In Form, and then submit the completed form to each of your health care providers to each of your health care providers that are ILHIE Connect Users but are not sharing your health information through ILHIE Connect. In order to share all of your health information through ILHIE Connect, you will need to submit an Opt-In Form to each of your health care providers who are ILHIE Connect Users but are not sharing your heath information through ILHIE Connect.

One your provider submits you completed Opt-In Form to the ILHIE Authority, it may take up to 3 business days after receipt for the restriction to be removed.