Meetings
September 28
Topic: IDPH Update: It's Fall What should we be seeing?
Description: We have been through a lot in the last year and 8 months. The rules have adapted to the current COVID situation and it is hard to keep it all straight. During this meeting, you will be given the opportunity to hear from the State, what you should be seeing so that you can best advocate for yourself and your loved ones. As always, there will be time for questions so you can make sure you feel fully empowered.
Presented by Infection Prevention Team, IL Department of Public Health
Previous Meetings
September 14
Topic: Understanding Guardianship in IL
Description: Guardianship can be a very confusing process. Understanding what it is and how to navigate will be the focus of this conversation.
Presented by Teresa Parks, Deputy Director and Human Rights Authority Director, Illinois Guardianship and Advocacy Commission
View Presentation Here.
August 31
Topic: Dementia Friendly Illinois
Description: Susan Frick, of the Rush Alzheimer's Disease Center and the Cognitive Resource Alliance, will discuss reversing the narrative. Communities, big and small, can see the value in making their communities more dementia friendly. Dementia Friendly Illinois is about improving the journey of persons with dementia and their support systems. We will discuss what is going on across the state and what you can do in your area to support this initiative.
August 17
Topic: Hospice and Palliative Care – What's the difference?
Description: Hospice and Palliative care are two person centered approaches to care for people as they navigate with disease process. We will discuss what each of these are and when care and services for these are beneficial to the person.
August 3
Topic: Understanding Dementia
Description: there are many different types of dementia and it is important to recognize the differences so that people are diagnosed properly. We will give a brief overview of some of the most common types of dementia to help gain a greater understanding of these diseases and why it's important to get a proper diagnosis.
July 20
Topic: Care Plans – What are they and what do I need to know
Description: Care Plans or Service Plans are integral to the care and services that you receive when you live in a long-term care facility. These basically are the directions for your care and where you have the opportunity to personal what you need, want and deserve. We will discuss the process and your role in assuring that your care plan meets what you need.
July 6
Topic: Understanding Your Financial Rights
Description: Just because you live in a Long-Term Care facility it doesn't mean that your rights to manage your money disappears. During this conversation we will discuss what are your Financial Rights and we will discuss the Stimulus funds that people have received and your rights regarding these.
VIEW PRESENTATION HERE.
June 22
Topic: It's June… what should we be seeing
Description: We are all excited that we are now at Phase 5 in IL and things are opening up! But unfortunately, it still looks different for long-term care facilities. We have invited IL Department of Public Health to come back and talk with us so that we can hear from them what we should be seeing in long-term care facilities throughout the state. We will also have the opportunity to ask questions and gain a better understand of what we can and can't do in regards to visitation and going out of the buildings.
VIEW PRESENTATION HERE.
June 8, 2021
Understanding Your Long-Term Care Discharge and Financial Rights
People who live in long-term care facilities have rights. At the next meeting, two of those rights will be highlighted. The fear of being discharged for no apparent reason can be very real for some. We will be addressing how long-term care facilities can only discharge you for very specific reason. These reasons will be discussed as well as a review of what are your financial rights. These two topics are very timely now that we are trying to recuperate after COVID.
VIEW PRESENTATION HERE.
Electronic Monitoring-Understanding Your Rights! Did you know that you can put a camera in your loved one's room? That is a right that you and the resident have. We will be discussing this, and a family member will share why and how she set it up for her loved one.
VIEW PRESENTATION HERE.
We Want to Hear from You! During this meeting everyone had the opportunity to voice concerns, ask questions and share stories. We were led through this conversation with a family member and a resident who shared their stories of how the pandemic personally affected them. We also shared a lot of links to assist with the conversation which are provided in the link below.
VIEW PRESENTATION HERE.
VIEW BROCHURE HERE.
Everyone deserves the ability to be able to advocate for themselves. But sometimes we can be fearful that someone might not want to hear what we are saying and then take it out on us. No one who lives in a long-term care facility should ever be fearful of speaking up. Kelly Richards, the State Long Term Care Ombudsman, Stephen Maxwell, Regional Ombudsman in the Peoria Area and Carrie Leljedal, family member and advocate discussed how to feel comfortable in making sure that you get what you need, want and deserve!
VIEW PRESENTATION HERE.
There are many different types of long-term care communities in IL and it can be very confusing. Jessica Belsy, Ombudsman Specialist, shared what are the various types of long-term care facilities and where to go to advocate for yourself or those you care about.
VIEW HANDOUT, FACILITY TYPES AND WHERE TO FILE A COMPLAINT, HERE.
Dr. Catherine Counard and Debra Burdsall from Illinois Department of Public Health, joined the group to discuss the IDPH revised guidance for Nursing Homes which includes information on the guidance changes, which was released on March 19, 2021. We had many questions and answers that really helped to understand what the IDPH is telling the facilities.
VIEW PRESENTATION HERE.
During this meeting we addressed Family's and Resident's concerns regarding visitation in Long Term Care Facilities. Kelly Richards, the State Ombudsman, provided us with a summary of the regulations regarding visitation during this pandemic and then Jessica Belsly, the State Ombudsman consultant along with Kelly provided answers to specific questions from the group.
VIEW PRESENTATION HERE.