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Support Waiver for Children and Young Adults with Developmental Disabilities

Operating Agency

Illinois Department of Human Services, Division of Developmental Disabilities (DHS-DDD)

Eligible Population

Children and young adults with developmental disabilities ages 3 through 21 who live at home with their families and are at risk of placement in an Intermediate Care Facility for persons with Developmental Disabilities (ICF/DD)

Eligibility Criteria

  • U.S. citizen or legal alien.
  • Resident of the State of Illinois and residing within the State.
  • Enrolled in Medicaid
    • Family income is waived, but the child’s financial resources are considered for Medicaid eligibility.
  • Ages 3 through 21.
  • Assessed as eligible for an institutional level of care for persons with intellectual disabilities or conditions similar to intellectual disabilities.
  • Not in need of 24-hour nursing care.

How to Access Services

Point of Entry – Preadmission Screening/Independent Service

Coordination (PAS/ISC) Agencies. These agencies can be contacted:

Services: (Descriptions)

  • Service Facilitation

  • Personal Support

  • Behavior Intervention and Treatment

  • Training and Counseling for Unpaid Caregivers

  • Adaptive Equipment

  • Assistive Technology

  • Home Accessibility Modifications

  • Vehicle Modifications

  • Temporary Assistance

**Medicaid waiver funding does not pay for room and board.

Medicaid Agency Contact Information

HFS Bureau of Long Term Care

1915 (c) Home and Community-Based Waiver Administrative Section

Phone: 1-217-557-1868

HFS Home and Community Based Services Waiver Programs

Service Descriptions

  • Service Facilitation: Provides assistance by a Qualified Support Professional, employed by or on contract with a contracted provider, to design an array of support services to meet the individual’s needs. The service facilitator also assists the family in finding providers and conducts monitoring of the provision of services in the support plan and ensures the health, safety, and welfare of the participant.
  • Personal Support: Includes services described in the individual’s service plan and services agreement, such as teaching adaptive skills to assist the individual to reach personal goals and assistance in activities of daily living. Personal support may be provided on a short-term basis because of absence or need of relief of those persons normally providing care.
  • Behavior Intervention and Treatment: Includes ongoing behavioral assessment, functional analysis, development of positive intervention strategies and techniques, participation in individual support plan development, training of family, direct support and other workers on the specifics of the individual's plan, and monitoring the effectiveness of the interventions.
  • Training and Counseling for Unpaid Caregivers: For individuals who provide unpaid support, training, companionship or supervision to participants. Training includes instruction about treatment regimens and other services included in the support plan, use of equipment specified in the support plan, and includes updates as necessary to safely maintain the participant at home. This service may not be provided in order to train paid caregivers or school workers.
  • Adaptive Equipment: Includes devices, controls or appliances that enable participants to increase their ability to perform activities of daily living; and devices, controls or appliances that enable participants to perceive, control, access or communicate with the environment in which they live.
  • Assistive Technology: An item, piece of equipment, or product system used to increase, maintain, or improve the ability of the person to be more independent. Assistive technology service directly assists a participant in the selection, acquisition or use of an assistive technology device.
  • Home Accessibility Modifications: Physical adaptations to the private residence of the participant or participant’s family, required by the participant’s support plan, that are necessary to ensure the health, welfare, and safety of the participant or that enable the participant to function with greater independence in the home. Example might include the installation of ramps and grab-bars, or widening doorways.
  • Vehicle Accessibility Modifications: Adaptations or alterations to an automobile or van that is the participant’s primary means of transportation in order to accommodate the special needs of the participant.
  • Temporary Assistance: Provided on an emergency basis because of the absence or incapacity of the persons who normally provide unpaid care. Absence or incapacity of the primary caregiver(s) must be due to a temporary cause, such as hospitalization, illness, injury, or another emergency situation.

Home and Community Based Services Waiver Programs

 Need Assistance?

Illinois Department of Healthcare and Family Services

JB Pritzker, Governor • Theresa Eagleson, Director

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