Current Investments

Investment Index

    • Advocacy

      • Project: Better Communication Better Health Care Campaign

        Summary: ​The Better Communication Better Health Care Campaign will arm individuals with developmental and other types of intellectual disabilities and their caregivers/ families with durable, portable and adaptable tools to better self-advocate for the healthcare that they are entitled to receive across the health care system. The Healthcare providers will be educated in treating individuals with IDD across the many different types of faculties that provide treatment. The Health Resume is the tool to facilitate communication between the patent and provider. It is to be used throughout all phases of treatment and included in every person with IDD’s electronic medical record.

      • Project: Going Home Coalition

        Summary: ​ICDD has worked with the Going Home Coalition for several years to build capacity in home and community-based services by advocating for rebalancing of institutional funding and the engagement of people with disabilities and families waiting for and receiving community-based services. The Arc of Illinois will reinvigorate the Going Home Coalition to increase community capacity and decrease investment in institutions. People with disabilities, families, Policymakers, and allies will be engaged in educational opportunities, rallies, and advocacy demonstrations to make Illinois an Inclusion First state. The Going Home Coalition's vision for Illinois is to be truly person-centered with responsive programs and systems that ensure people with disabilities have lives that are full and lived in the broader community.

      • Project: Illinois Statewide Self-Advocacy Organization

        Summary: The Alliance will consist of a network of self-advocacy groups and self-advocates that, through local action, will improve their lives, change local service practices, or make contributions to their communities. In addition, self-advocates, by working together, will promote statewide needed changes in disability policy and practices.

      • Project: Medical Advocacy: Understanding Rights and Interactions with People with Intellectual and Developmental Disabilities

        Summary: ​This project educates people and healthcare providers in the Peoria region to assure people with IDD have the best possible health. People with disabilities and families are equipped to recognize health concerns and preventative care needs and access care in an array of settings using the Health Risk Screening Tool. Healthcare providers at area nursing schools and clinics, and hospitals are trained on rights, respect, and health of people with IDD.

      • Project: National Leadership Consortium on DD Training Series

        Summary: The National Leadership Consortium on Developmental Disabilities will offer leadership development training and future of the field training and staff development to Illinois disability service sector leaders, IL Partners in Policymaking alumni, and Council members. The components will promote the development and efforts of disabilities service sector leaders as they continue the shift towards individualized, person-directed, inclusive supports in Illinois. Components 1. Two Virtual Illinois Leadership Institutes for current and emerging agency leaders 2. One Future of the Field Training for varied stakeholders 3. ICDD Council Member Development 4. Partners in Policymaking Alumni Engagement Sessions

      • Project: Speak Up and Speak Out

        Summary: ​This initiative will execute a statewide Summit in the Fall of 2017- 2021. The summit provides an opportunity for self-advocates to come together from throughout the state and share activities and training designed to help each achieve the highest level of independence and self-direction in their life as possible. Self-advocates will learn to speak up about what is important to them and how to work on making changes in their lives. Self-advocates will have the opportunity in this type of setting to feel comfortable enough to speak what they feel which helps staff and families understand better and also helps each self-advocate learn more about what they themselves want. The project follows up with attendees to document how self-advocates are using their advocacy skills and to connect them to local advocacy groups if they desire.

    • Education and Early Intervention

      • Project: Project INITIATE

        Summary: Project INITIATE tests the feasibility of a Neonatal Intensive CareUnit-to-home service delivery model which provides interim services for infants until Early Intervention provides services identified in the infant’s Individualized Family Service Plan. Outcome data for infants and their families and lessons learned about the process of connecting families to Early Intervention will inform recommendations for system improvements.

      • Project: Strengthening Early Childhood Inclusion Early Learning Community Based Organization and Local Education Authority Coordina

        Summary: Start Early will engage a range of K-12 stakeholders including school districts, their associations, and regional offices of education. This outreach, the interviews, and the materials shared in this initial phase will begin creating greater awareness among LEA leadership of inclusion requirements and practices. Informed by these engagements, the project will have a set of materials to use in conducting further outreach and will also prepare a brief documenting early findings about the level of awareness of obligations for providing preschool special education and related services in the least restrictive environment, barriers and challenges to doing so and initial recommendations to address those barriers. Public Awareness and education continues to elevate this issue and potential solutions now that the Strengthening Early Childhood Inclusion report was issued in Nov. 2021.

      • Project: Transition Oversight

        Summary: Four Southern Illinois Transition Projects will receive technical assistance and coaching and create successful post-secondary outcomes in the areas of education/training, employment, and independent living for at least 50 transition age individuals with I/DD per proposal.

    • Employment

      • Project: Competitive Pay and Meaningful Days

        Summary: The goals of our project are to eliminate our own subminimum wage program by the end of 2020 and increase the number of clients in our day programming that are in integrated community jobs over the next 2 years. We are proposing to engage in employment training for staff and systemic changes to our practice that will ultimately lead to 124 clients obtaining competitive integrated employment by the end of the project period.

      • Project: Customized Employment Training Series

        Summary: Marc Gold & Associates (MG&A) is a network of training consultants who are disability professionals specializing in the area of employment and community participation for persons with significant disabilities. They are offering a training series focusing on Customized Employment (CE) for people working in the field providing employment services in Illinois.

      • Project: Disability Hiring Models - Development and Identification

        Summary: Anixter will support self-advocates who desire to work in an integrated, competitive work environment through identifying and supporting business and corporate partners who can effectively and deliberately support the employment of people with developmental disabilities and then direct self-advocates to these employers for hire into integrated, competitive wage opportunities. Over the two-year period of the project we will engage with 100 businesses to build a system for increased hiring of people with developmental disabilities in Chicago with at least 51 individuals being hired by one of those businesses within the project period.

    • Formal/Informal Community Supports

      • Project: CTF Illinois Southern IL Transition Project

        Summary: ​Community employment opportunities will be provided to transition-age people. Self-Determination Training for transition-age people and PATHWAYS planning for the person-centered planning process. Trainings will be provided to families on guardianship, special needs trusts, ABLE accounts, and Social Security disability benefits. Trainers will provide personal care planning facilitator trainings to self-advocates, family members, and professionals. Planning Alternative Tomorrows with Hope (PATH) curriculum will also be provided. Self-advocates will receive additional training and will be instrumental in being paid mentors in this project and demonstrating the strength of self-advocacy.

      • Project: CTS Creative Transitions

        Summary: ​A whole life, person centered approach for transition age youth will be implemented by providing training, advocacy, and opportunities to allow for increased life choices. Travel training and community-based instruction will be provided in collaboration with RIDES Mass Transit. A discovery process that is comprehensive and tailored to individual needs will be provided. A finished product will identify strengths, preferences, needs, supports, barriers, risk factors/safety, relationships/social skills, financial literacy, transportation, current and secondary training/education, career and income, soft skills, health and well-being, communication, assistive technology, and choice/decision making for youth transition-age and family.

      • Project: Financial Wellness for Persons with Developmental Disabilities

        Summary: NDI will bring resources to Illinois that have been shown to be effective in addressing the unique needs of the developmental disability community in achieving financial wellness. 90 Financial Wellness Trainers will be equipped to provide extensive training statewide to 2000 people with I/DD and 500 family members. NDI will update the “Upward to Financial Stability Train the Trainer Curriculum” to be specific for Illinois and retitle the curriculum to “Financial Wellness for Persons with Disabilities Trainer Curriculum.”. Partners in Policymaking members, Vocational Rehabilitation counselors, Med-waiver providers, disability organizations and self-advocates will be trained to offer the curriculum within their organizations. A three-part webinar series will be offered to the community at large during each year of the project. A Trainer Support Network (TSN) will be established after the initial trainings are completed.

      • Project: HCBS Settings Rules Implementation Technical Assistance Project

        Summary: The project will provide technical assistance and oversight to a cohort of 20 community providers to determine the amount of time necessary to provide effective technical assistance, feasibility, and cost of a larger scale intervention. Once the targeted pilot technical assistance has been analyzed, technical assistance will be provided on a larger statewide scale inclusive of learnings from the phase 1 pilot. Watch ICDD Info messages for information on how to apply for the pilot.

      • Project: Transforming Employment and Post-Secondary Education Services to Transition Age Youth in Monroe County

        Summary: This project serves Clark, Clay, Coles, Cumberland, Douglas, Edgar, Effingham, Jasper, Moultrie, Richland, and Shelby counties. Community employment opportunities will be provided to transition-age people. Self-Determination Training will be provided for transition-age people and PATHWAYS planning for the person-centered planning process. Trainings will be provided to families on guardianship, special needs trusts, ABLE accounts, and Social Security disability benefits. Trainers will also provide personal care planning facilitator trainings to self-advocates, family members, and professionals. CTS uses Planning Alternative Tomorrows with Hope (PATH) curriculum with students and families. Self-advocates will receive additional training and will be instrumental in being paid mentors in this project and demonstrating the strength of self-advocacy.

      • Project: Transforming Employment and Post-Secondary Education Services to Transition Age Youth in Monroe County

        Summary: ​The person-centered planning process will be implemented through the use of a Personal Outcome Measure Assessment. All teachers, school personnel and HSS staff will complete training in Secondary Transition: Student-Centered Transition Planning, developed by The Iris Center at Vanderbilt University. Coaches/mentors will be responsible for assisting the apprentices' with implementing their personal plan, implementing any necessary accommodations, breaking down tasks on a job, and learning to navigate/access public transportation. Building Futures will also utilize the Microcredential Learning Management System, a resource through the ROE, which would provide an online certification in specific fields, increasing marketability of the apprentice. Transportation training will be provided through the Local Transportation Monroe Randolph Transit.

    • Health

      • Project: Expanding the Public Health Workforce DD Network Collaboration Project

        Summary: The project will help people with IDD and other disabilities safeguard themselves against contracting COVID-19 and gain necessary supports to recover from problems associated with the pandemic. Through brief legal advice, extended assistance, direct legal representation, training, or information and referral, Equip for Equality will engage in a variety of self-advocacy support and legal assistance activities to help people with disabilities transition from congregate settings to places in the community to reduce their chances of contracting COVID; advocate for more healthcare staff in institutions; secure proper placements and supports for students affected by changes in learning; and promote an increase in the public health workforce by providing support when employees and students need reasonable accommodations to continue working and learning.

      • Project: Vax For All Illinois with Disabilities

        Summary: InfiniTeach will create a scalable technology solution to address vaccine hesitancy among the IDD community utilizing peer coaching, expert-developed resources, and a responsive SMS platform.

    • Housing

      • Project: Supportive Housing Coordination Project Technical Assistance

        Summary: This project supports a future, larger Supportive Housing investment from ICDD. Technical Assistance (TA) for the larger project will ensure that the larger project will be supported from the very beginning. Having the TA to start before the projects' start allows for the needed lead time to ensure comprehensive and cohesive upstart of the new project. Technical assistance and oversight will be provided in a multi-faceted approach that includes program development, coaching, multi-site coordination, cross-system collaboration, and access to relevant training opportunities. The technical assistance structure will evolve in tandem with the overall statewide initiative and will be responsive to the needs of ICDD, IDHS-DDD, and the grantees.

    • Other

      • Project: Policy Project

        Summary: This project will facilitate the coordinated tracking and sharing of relevant legislation and policy proposals and acquisition of information about initiatives directly from the sources as well as from policy staff and policymakers.

    • Quality Assurance

      • Project: Consumer Stipend Program

        Summary: This project provides stipends for people with disabilities and their families to attend conferences on disability-related issues.