We are excited to announce that the Council has voted to invest a total of $284,061 in response to the “Medical Advocacy: Understanding Rights and Interactions with People with Intellectual and Developmental Disabilities” Call for Investment (CFI), in addition to awarding a Direct Investment to the Association for Individual Development (AID), in the amount of $66,500.
Medical Advocacy: Understanding Rights and Interactions with People with Intellectual and Developmental Disabilities
Funding Decision Overview
Congratulations to the three projects that will be funded under the medical advocacy initiative:
1. The University of Illinois at Chicago – Institute for Disability and Human Development (IDHD)
2. Ray Graham Association
These projects meet the Council’s Systems Change goal under the following objective:
By September 30, 2021, individuals with intellectual and developmental disabilities, their families, and other stakeholders will have access to coordinated, streamlined information about services, supports, and other assistance.
Each project will receive funding over 2 years to implement targets A and/or B, as was identified in the CFI.
Target A: Individuals with IDD and their family members will know their rights and have the information they need to get their medical care needs adequately and sensitively met.
Target B: Healthcare professionals and/or office staff have knowledge and ready access to information, so they effectively and sensitively communicate with patients with IDD and provide quality healthcare service and can quickly access information such as how to assure healthcare coverage and referrals, so the patient is able to follow treatment recommendations.
Grantee: The University of Illinois at Chicago – Institute for Disability and Human Development (IDHD) Project Overview
Grantee: The University of Illinois at Chicago – Institute for Disability and Human Development (IDHD)
Project Name: Pre-Service training for Healthcare Professionals
• Collaborate with five university programs for medical students and enhancing their curricula with the following components: ensuring rights of people with intellectual and developmental disabilities (IDD) for treatment decision and continuum of care, disability etiquette, and knowledge on IDD support services
• Host two annual coalition meetings in which collaborating university medical and health programs can network and exchange information on providing treatment for patients with IDD. Provide a means to expand to additional programs
• Develop an online web portal at IDHD that collects and disseminates instructional materials related to pre-service training about people with IDD
Grantee: Ray Graham Association
Project Name: Better Communication & Better Healthcare Campaign
• Arm individuals with developmental and other types of intellectual disabilities and their caregivers/families with durable, portable and adaptable tools to better self-advocate for the healthcare via a Health Resume
• Develop an app for the Health Resume and a pictorial version, which can be readily shared for wider use
• Host webinars and a community health fair to educate healthcare providers on use of the Health Resume as an adjunct to electronic records to properly communicate with patients with developmental disabilities regarding their care
Project Name: Medical Advocacy
• Educate people and healthcare providers in the 5 county Peoria area
• Use the Health Risk Screening Tool and an accessible curriculum for assessment and instruction
• Build on a partnership with UnityPoint Health Methodist to train area nursing schools, urgent care and specialty clinics, emergency room and hospital personnel on rights, respect and health of people with I/DD
Community Cares Project
Funding Decision Overview
Public Act 100-1129, effective 1/1/19, allows for a county, municipality, or township to create a local referendum paid through a real estate tax levy to fund local developmental disabilities services overseen by a Developmental Disabilities board, also knows as a 377 board. This legislation allows for smaller governmental units, such as municipalities and townships, to create these referenda whereas before it was only available at the county level. Should voters in these areas pass the referenda, the funding allows for local control and local resources to be invested in local programs for local community members. AID in collaboration with other community partners astutely identified that while this extra revenue stream for DD services could create access to many crucial services at the local level, it was clear exactly how to organize as a community to start the process of getting a referendum on a ballot was complicated and daunting. For individuals and families to advocate for this at their local levels, education must be provided to give them the tools needed to successfully engage in this process.
AID Project Deliverables:
• Statewide approach targets all IL communities
• Creation of website and collection of materials results in replicable opportunities after grant window
• A tiered training protocol provides for ample opportunity for people to be educated on the topic then organize for further, in-depth training if desired
• 12 geographically diverse town halls per region provides for ample opportunity for individuals and families to learn about the opportunity to ask for further trainings
• All training materials will be accessible, as well as, translated into Spanish
This project meets the Council’s Systems Change goal under the following objective:
By September 30, 2021, the Illinois Council on Developmental Disabilities will help 10 communities develop local resources and adapt to provide full access to municipal, civic, social, spiritual, and all other aspects of community life for individuals with intellectual and developmental disabilities.