| Title: | Rare Disease Commission | | Website: | Rare Disease Commission | | Contact Name: | Joan Ehrhardt | | Contact Title: | Department of Public Health | | Contact Phone: | (217) 557-2566 | | Contact Comments: | | | Function: | To advise the State on issues pertaining to the care and treatment of individuals with rare diseases. This Act is repealed on January 1, 2027. | | Term: | 3 years. No member shall serve more than 2 consecutive terms. Members shall serve until a successor is appointed and qualified. Vacancies shall be filled in the same manner as the initial appointments. Appointments to fill vacancies occurring before the expiration of a term shall be for the remainder of theunexpired term. The Governor, House Speaker, House Minority Leader, Senate President, and Senate Minority Leader shall make their initial appointments to the Commission by February 1, 2017. | | Senate Confirmation: | No | | Qualifications: | | | Compensation: | N/A | | Composition: | 15 Members: 11 appointed by the Governor, residents of the State whose position, knowledge, or experience enables them to reasonably represent the concerns, needs, and recommendations of those with rare diseases, including physicians or health care providers who treat patients with a rare disease, 5 members, at minimum, shall be persons who either have a rare disease or are a family member; 4 General Assembly members, 1 appointed by the Senate President, 1 appointed by the Senate Minority Leader, 1 appointed by the House Speaker, 1 appointed by the House Minority Leader | | Authority: | 410 ILCS 445 |
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