Illinois Council on Developmental Disabilities

 Spotlight

  • IL Partners in Policymaking Leadership Training

    Partners in Policymaking® is a leadership training program designed for parents of school age children with developmental disabilities and adults with disabilities. The Partners program was created by the Minnesota Governor's Council on Developmental Disabilities more than 30 years ago, and has since been offered nationally and internationally.

  • Developmental Disabilities Act

    ​In every state and territory, programs authorized by the Developmental Disabilities Assistance and Bill of Rights Act (DD Act) empower individuals with developmental disabilities and their families to help shape policies that impact them. DD Act programs conduct important research and test innovative new service delivery models. They work to bring the latest knowledge and resources to those who can put it to the best use, including self-advocates, families, service providers, and policymakers. DD Act programs also investigate cases of abuse and serve as advocates for individuals with developmental disabilities and their families.

  • Tell Us Your Story

    ​The Illinois Council on Developmental Disabilities is collecting stories representing the experience of individuals living with a developmental disability in Illinois. These stories will be instrumental in the efforts of ICDD to advocate for Illinoisans living with disabilities. Stories will be shared with legislators (policy makers), agencies, and more. Your voice will be heard!

 Announcements

  • HCBS Final Settings Rule & IL Statewide Transition Plan (STP)

    In 2014, the Centers for Medicare and Medicaid Services (CMS) published final regulations that pertain to Home and Community-Based Services (HCBS) programs.  The regulations require that any setting that provides Medicaid services demonstrate that characteristics of a community-based, rather than an institutional setting, and the regulations provide guidance to distinguish the two.  While every person gets different services that are unique to them, the new rules emphasize that community participation and integration should be the standard and that everyone should have access to more than one community.  Illinois is one of five states that still does not have approved statewide transition plan and per the federal government, the HCBS Settings Rule must be implemented by March 2022.  Background on the rule and resources for self-advocates can be found at this link https://www.illinois.gov/hfs/SiteCollectionDocuments/PNforTransitionPlan2020FINAL.pdf 

    The revised Statewide Transition Plan is accessible through the HFS website:  https://www.illinois.gov/hfs/MedicalClients/HCBS/Transition/Pages/TransitionPlan.aspx#Subhead6 

    WE NEED YOUR HELP to ensure that the settings rule is implemented fully and the state provides funding to support transition of HCBS services to meet the settings rule. 

  • HCBS Final Settings Rule & IL Statewide Transition Plan (STP)

    In 2014, the Centers for Medicare and Medicaid Services (CMS) published final regulations that pertain to Home and Community-Based Services (HCBS) programs.  The regulations require that any setting that provides Medicaid services demonstrate that characteristics of a community-based, rather than an institutional setting, and the regulations provide guidance to distinguish the two.  While every person gets different services that are unique to them, the new rules emphasize that community participation and integration should be the standard and that everyone should have access to more than one community.  Illinois is one of five states that still does not have approved statewide transition plan and per the federal government, the HCBS Settings Rule must be implemented by March 2022.  Background on the rule and resources for self-advocates can be found at this link https://www.illinois.gov/hfs/SiteCollectionDocuments/PNforTransitionPlan2020FINAL.pdf 

    The revised Statewide Transition Plan is accessible through the HFS website:  https://www.illinois.gov/hfs/MedicalClients/HCBS/Transition/Pages/TransitionPlan.aspx#Subhead6 

    WE NEED YOUR HELP to ensure that the settings rule is implemented fully and the state provides funding to support transition of HCBS services to meet the settings rule. 

  • Sibling Support Project

    ​The Sibling Leadership Network has been funded  to educate siblings, parents and professionals through provision of an array of new resources. The Illinois state sibling chapter, Supporting Illinois Brothers and Sisters (SIBSS) will gain capacity for the future.

  • PUNS Selection Update

    ​The Division of Developmental Disabilities (DDD) created an email account for people to find out the status for being selected off the PUNS list.  Name, birthdate, and "please tell me where I am in getting selected off of PUNS" can be sent to DHS.DDD.PUNS@illinois.gov

  • Medical Advocacy: Understanding Rights and Interactions with People with Intellectual and Developmental Disabilities Funding Decision Overview

    Congratulations to the three projects that will be funded under the medical advocacy initiative:

    1. The University of Illinois at Chicago – Institute for Disability and Human Development (IDHD)
    2. Ray Graham Association 
    3. EP!C  

 Featured Projects

  • Financial Wellness for Persons with Developmental Disabilities

    NDI will bring resources to Illinois that have been shown to be effective in addressing the unique needs of the developmental disability community in achieving financial wellness. 90 Financial Wellness Trainers will be equipped to provide extensive training statewide to 2000 people with I/DD and 500 family members. NDI will update the “Upward to Financial Stability Train the Trainer Curriculum” to be specific for Illinois and retitle the curriculum to “Financial Wellness for Persons with Disabilities Trainer Curriculum.”. Partners in Policymaking members, Vocational Rehabilitation counselors, Med-waiver providers, disability organizations and self-advocates will be trained to offer the curriculum within their organizations. A three-part webinar series will be offered to the community at large during each year of the project. A Trainer Support Network (TSN) will be established after the initial trainings are completed.
  • Going Home Coalition

    ​ICDD has worked with the Going Home Coalition for several years to build capacity in home and community-based services by advocating for rebalancing of institutional funding and the engagement of people with disabilities and families waiting for and receiving community-based services. The Arc of Illinois will reinvigorate the Going Home Coalition to increase community capacity and decrease investment in institutions. People with disabilities, families, Policymakers, and allies will be engaged in educational opportunities, rallies, and advocacy demonstrations to make Illinois an Inclusion First state. The Going Home Coalition's vision for Illinois is to be truly person-centered with responsive programs and systems that ensure people with disabilities have lives that are full and lived in the broader community.

 Stay Connected

This project was supported, in part by grant numbers 19/2001ILSCDD-02, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official ACL policy.