Illinois Council on Developmental Disabilities

 Spotlight

  • IL Partners in Policymaking Leadership Training

    Partners in Policymaking® is a leadership training program designed for parents of school age children with developmental disabilities and adults with disabilities. The Partners program was created by the Minnesota Governor's Council on Developmental Disabilities more than 30 years ago, and has since been offered nationally and internationally.

  • Developmental Disabilities Act

    ​In every state and territory, programs authorized by the Developmental Disabilities Assistance and Bill of Rights Act (DD Act) empower individuals with developmental disabilities and their families to help shape policies that impact them. DD Act programs conduct important research and test innovative new service delivery models. They work to bring the latest knowledge and resources to those who can put it to the best use, including self-advocates, families, service providers, and policymakers. DD Act programs also investigate cases of abuse and serve as advocates for individuals with developmental disabilities and their families.

  • Tell Us Your Story

    ​The Illinois Council on Developmental Disabilities is collecting stories representing the experience of individuals living with a developmental disability in Illinois. These stories will be instrumental in the efforts of ICDD to advocate for Illinoisans living with disabilities. Stories will be shared with legislators (policy makers), agencies, and more. Your voice will be heard!

 Announcements

  • HCBS Final Settings Rule & IL Statewide Transition Plan (STP)

    In 2014, the Centers for Medicare and Medicaid Services (CMS) published final regulations that pertain to Home and Community-Based Services (HCBS) programs.  The regulations require that any setting that provides Medicaid services demonstrate that characteristics of a community-based, rather than an institutional setting, and the regulations provide guidance to distinguish the two.  While every person gets different services that are unique to them, the new rules emphasize that community participation and integration should be the standard and that everyone should have access to more than one community.  Illinois is one of five states that still does not have approved statewide transition plan and per the federal government, the HCBS Settings Rule must be implemented by March 2022.  Background on the rule and resources for self-advocates can be found at this link https://www.illinois.gov/hfs/SiteCollectionDocuments/PNforTransitionPlan2020FINAL.pdf 

    The revised Statewide Transition Plan is accessible through the HFS website:  https://www.illinois.gov/hfs/MedicalClients/HCBS/Transition/Pages/TransitionPlan.aspx#Subhead6 

    WE NEED YOUR HELP to ensure that the settings rule is implemented fully and the state provides funding to support transition of HCBS services to meet the settings rule. 

  • ICDD FUNDS PROVIDERS TO MOVE TO COMPETITIVE EMPLOYMENT

    ICDD has funded two projects under its Competitive Pay and Meaningful Days Call for Investment! Congratulations to Anixter Center and Envision Unlimited! These will be 2-year projects with an investment of $189,040.

    The purpose of this initiative is to improve the employment outcomes of people with Developmental Disabilities (DD) who are currently receiving subminimum wages by supporting providers to build, expand and sustain effective skills, capacity and competencies related to integrated employment, integrated meaningful day activities, and person-centered services. This initiative is also in response to the City of Chicago's minimum wage ordinance which accelerates minimum wage increase and removes the allowance of sub-minimum wage by 2021.

  • ICDD 5-Year State Plan Public Survey

    ​ICDD wants to hear from you!

    The Illinois Council on Developmental Disabilities (ICDD) is looking closely at Illinois and the needs of every person with a developmental disability to be able to live a healthy and happy life in their community. The Council’s activities and funding opportunities are guided by our current 5-Year State Plan (YSP).

     

    We are looking ahead to what should be in our next 5-YSP which begins in the fall of 2021. Therefore, ICDD invites you to share your thoughts with us by taking a short survey (5 minutes).


    Take the survey!

  • COVID 19 Support Persons in Health Care Facilities (including hospitals)

    The Illinois Department of Public Health (IDPH) clarifies that health care facilities (including hospitals) should allow patients with intellectual and/or developmental disabilities or cognitive impairments to be accompanied by a support person determined to be essential to their care. Individuals with intellectual and/or developmental disabilities (I/DD) may require accommodations in a health care facility that include permitting the presence of a support person, such as a guardian, family member, caregiver, or paid support worker, provided that essential precautions can be taken to contain the spread of infection.

    https://www.dhs.state.il.us/OneNetLibrary/27896/documents/COVID19/20200515_IDPH_SupportPersons_HCF.pdf

  • HCBS Final Settings Rule & IL Statewide Transition Plan (STP)

    In 2014, the Centers for Medicare and Medicaid Services (CMS) published final regulations that pertain to Home and Community-Based Services (HCBS) programs.  The regulations require that any setting that provides Medicaid services demonstrate that characteristics of a community-based, rather than an institutional setting, and the regulations provide guidance to distinguish the two.  While every person gets different services that are unique to them, the new rules emphasize that community participation and integration should be the standard and that everyone should have access to more than one community.  Illinois is one of five states that still does not have approved statewide transition plan and per the federal government, the HCBS Settings Rule must be implemented by March 2022.  Background on the rule and resources for self-advocates can be found at this link https://www.illinois.gov/hfs/SiteCollectionDocuments/PNforTransitionPlan2020FINAL.pdf 

    The revised Statewide Transition Plan is accessible through the HFS website:  https://www.illinois.gov/hfs/MedicalClients/HCBS/Transition/Pages/TransitionPlan.aspx#Subhead6 

    WE NEED YOUR HELP to ensure that the settings rule is implemented fully and the state provides funding to support transition of HCBS services to meet the settings rule. 

  • Sibling Support Project

    ​The Sibling Leadership Network has been funded  to educate siblings, parents and professionals through provision of an array of new resources. The Illinois state sibling chapter, Supporting Illinois Brothers and Sisters (SIBSS) will gain capacity for the future.

 Featured Projects

  • Financial Wellness for Persons with Developmental Disabilities

    NDI will bring resources to Illinois that have been shown to be effective in addressing the unique needs of the developmental disability community in achieving financial wellness. 90 Financial Wellness Trainers will be equipped to provide extensive training statewide to 2000 people with I/DD and 500 family members. NDI will update the “Upward to Financial Stability Train the Trainer Curriculum” to be specific for Illinois and retitle the curriculum to “Financial Wellness for Persons with Disabilities Trainer Curriculum.”. Partners in Policymaking members, Vocational Rehabilitation counselors, Med-waiver providers, disability organizations and self-advocates will be trained to offer the curriculum within their organizations. A three-part webinar series will be offered to the community at large during each year of the project. A Trainer Support Network (TSN) will be established after the initial trainings are completed.
  • Going Home Coalition

    ​ICDD has worked with the Going Home Coalition for several years to build capacity in home and community-based services by advocating for rebalancing of institutional funding and the engagement of people with disabilities and families waiting for and receiving community-based services. The Arc of Illinois will reinvigorate the Going Home Coalition to increase community capacity and decrease investment in institutions. People with disabilities, families, Policymakers, and allies will be engaged in educational opportunities, rallies, and advocacy demonstrations to make Illinois an Inclusion First state. The Going Home Coalition's vision for Illinois is to be truly person-centered with responsive programs and systems that ensure people with disabilities have lives that are full and lived in the broader community.

 Stay Connected

This project was supported, in part by grant numbers 19/2001ILSCDD-02, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official ACL policy.