Illinois Council on Developmental Disabilities


  • IL Partners in Policymaking Leadership Training

    Partners in Policymaking® is a leadership training program designed for parents of school age children with developmental disabilities and adults with disabilities. The Partners program was created by the Minnesota Governor's Council on Developmental Disabilities more than 30 years ago, and has since been offered nationally and internationally.

  • Developmental Disabilities Act

    ​In every state and territory, programs authorized by the Developmental Disabilities Assistance and Bill of Rights Act (DD Act) empower individuals with developmental disabilities and their families to help shape policies that impact them. DD Act programs conduct important research and test innovative new service delivery models. They work to bring the latest knowledge and resources to those who can put it to the best use, including self-advocates, families, service providers, and policymakers. DD Act programs also investigate cases of abuse and serve as advocates for individuals with developmental disabilities and their families.

  • Tell Us Your Story

    ​The Illinois Council on Developmental Disabilities is collecting stories representing the experience of individuals living with a developmental disability in Illinois. These stories will be instrumental in the efforts of ICDD to advocate for Illinoisans living with disabilities. Stories will be shared with legislators (policy makers), agencies, and more. Your voice will be heard!


  • HCBS Final Settings Rule & IL Statewide Transition Plan (STP)

    In 2014, the Centers for Medicare and Medicaid Services (CMS) published final regulations that pertain to Home and Community-Based Services (HCBS) programs.  The regulations require that any setting that provides Medicaid services demonstrate that characteristics of a community-based, rather than an institutional setting, and the regulations provide guidance to distinguish the two.  While every person gets different services that are unique to them, the new rules emphasize that community participation and integration should be the standard and that everyone should have access to more than one community.  Illinois is one of five states that still does not have approved statewide transition plan and per the federal government, the HCBS Settings Rule must be implemented by March 2022.  Background on the rule and resources for self-advocates can be found at this link 

    The revised Statewide Transition Plan is accessible through the HFS website: 

    WE NEED YOUR HELP to ensure that the settings rule is implemented fully and the state provides funding to support transition of HCBS services to meet the settings rule. 

  • Funding Announcement

    The Illinois Council on Developmental Disabilities (ICDD) announces an award to The Arc of Illinois to facilitate a five (5) year Speak Up & Speak Out Summit (SUSO) project. Congratulations!

  • Award to Lurie Children's Hospital Project INITIATE

    The Illinois Council on Developmental Disabilities (ICDD) announces an award to Lurie Children's Hospital of Chicago. This project expands upon a pilot begun through a Patrick M. Magoon Institute for Healthy Communities Grant. 

    Project INITIATE targets children discharged from three renowned level III NICU's in Chicago in order to provide prompt and equitable therapy service that improves infant and family outcomes.

  • Learn about 377 Board Development

    ​Training on how to develop a 377 Board is coming October 20, 2021 at 10 a.m., 1 p.m., and 7 p.m. A 377 Board can help communities provide needed supports and resources for individuals with disabilities. Funds stay within your community.  Registration information and links are in the flyer.

    377webinar_10.20.21 (003).pdf

  • InfiniTeach Vax for All project

    The Illinois Council on Developmental Disabilities (ICDD) is pleased to announce an investment in InfiniTeach to implement a project which is designed to address Covid 19 vaccine hesitancy and assist individuals with developmental disabilities and those around them to get vaccinated.


    ICDD has funded two projects under its Competitive Pay and Meaningful Days Call for Investment! Congratulations to Anixter Center and Envision Unlimited! These will be 2-year projects with an investment of $189,040.

    The purpose of this initiative is to improve the employment outcomes of people with Developmental Disabilities (DD) who are currently receiving subminimum wages by supporting providers to build, expand and sustain effective skills, capacity and competencies related to integrated employment, integrated meaningful day activities, and person-centered services. This initiative is also in response to the City of Chicago's minimum wage ordinance which accelerates minimum wage increase and removes the allowance of sub-minimum wage by 2021.

 Featured Projects

  • Customized Employment Training Series

    Marc Gold & Associates (MG&A) is a network of training consultants who are disability professionals specializing in the area of employment and community participation for persons with significant disabilities. They are offering a training series focusing on Customized Employment (CE) for people working in the field providing employment services in Illinois.
  • Expanding the Public Health Workforce DD Network Collaboration Project

    The project will help people with IDD and other disabilities safeguard themselves against contracting COVID-19 and gain necessary supports to recover from problems associated with the pandemic. Through brief legal advice, extended assistance, direct legal representation, training, or information and referral, Equip for Equality will engage in a variety of self-advocacy support and legal assistance activities to help people with disabilities transition from congregate settings to places in the community to reduce their chances of contracting COVID; advocate for more healthcare staff in institutions; secure proper placements and supports for students affected by changes in learning; and promote an increase in the public health workforce by providing support when employees and students need reasonable accommodations to continue working and learning.
  • Financial Wellness for Persons with Developmental Disabilities

    NDI will bring resources to Illinois that have been shown to be effective in addressing the unique needs of the developmental disability community in achieving financial wellness. 90 Financial Wellness Trainers will be equipped to provide extensive training statewide to 2000 people with I/DD and 500 family members. NDI will update the “Upward to Financial Stability Train the Trainer Curriculum” to be specific for Illinois and retitle the curriculum to “Financial Wellness for Persons with Disabilities Trainer Curriculum.”. Partners in Policymaking members, Vocational Rehabilitation counselors, Med-waiver providers, disability organizations and self-advocates will be trained to offer the curriculum within their organizations. A three-part webinar series will be offered to the community at large during each year of the project. A Trainer Support Network (TSN) will be established after the initial trainings are completed.
  • HCBS Settings Rules Implementation Technical Assistance Project

    The project will provide technical assistance and oversight to a cohort of 20 community providers to determine the amount of time necessary to provide effective technical assistance, feasibility, and cost of a larger scale intervention. Once the targeted pilot technical assistance has been analyzed, technical assistance will be provided on a larger statewide scale inclusive of learnings from the phase 1 pilot. Watch ICDD Info messages for information on how to apply for the pilot.
  • Policy Project

    This project will facilitate the coordinated tracking and sharing of relevant legislation and policy proposals and acquisition of information about initiatives directly from the sources as well as from policy staff and policymakers.

 Stay Connected

This project was supported, in part by grant numbers 19/2001ILSCDD-02, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official ACL policy.